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Solving the puzzle: Autism diagnosis often takes longer for girls, whose symptoms can differ from boys'

Lauren J. Mapp, The San Diego Union-Tribune on

Published in Health & Fitness

UCLA Health reports that nearly 80 percent of autistic women are undiagnosed at age 18.

Among those not diagnosed until adulthood is Jennifer Cook, author of the memoir“Autism in Heels” and nine other books about autism. Her virtual coaching for neurodiverse people is featured on the Netflix series “Love on the Spectrum U.S.,” which was renewed for a third season earlier this month.

In 2011, Cook was identified as being on the spectrum at 35, after her three children were diagnosed. At the time, some of the specialists working with her daughter, then 7, would ask questions about why Cook was using specific methods during home school lessons.

After several specialists asked similar questions, Cook started to question whether she, too, had autism spectrum disorder. But at the time, she couldn’t find information about what autism looked like in women and girls.

So, Cook listed how she thought the condition showed up in her life, “Chicklist Check List,” which she later published in her memoir. She brought it to her therapist, who agreed with her self-assessment.

She said that while getting a diagnosis can be self-affirming, people shouldn’t think it in any way limits who they are and what they are capable of.

 

“I went to two Ivy League schools, I was the social chair for my sorority and a college cheerleader,” Cook said. “I don’t fit the bill of what a stereotypical autistic person looks like and I think that’s cool.”

Why fewer girls and women get diagnosed early

There are several reasons that may cause a gender-based disparity.

Because a lot of autism research has historically focused on males, the diagnostic criteria has long been based on how they experience the condition. That has led to biases in screening practices, leading to girls and women being less likely to be identified.

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